No. I can’t provide medical advice, diagnoses, or treatment recommendations. Anything I share is for general informational purposes or my personal experience only and should not replace care from a qualified healthcare professional.

I don’t offer medical consultations or patient coaching.

However, I do engage in education-focused collaborations, research discussions, and science communication projects.

My goal is to help bridge gaps between research, clinical care, and lived experience, but I am not the right kind of doctor to help with individual clinicial guidance!

First, you’re not alone—and it’s okay to feel overwhelmed and not know where to start.

A good place to start is with patient-centered organizations that offer educational resources, clinician directories, and community support:

• Connective Tissue Coalition – patient advocacy, education, and research efforts across connective tissue disorders

• The Ehlers-Danlos Society – education, diagnostic criteria, clinician directories, and research updates

• Dysautonomia International– resources on POTS and other autonomic disorders, physician lists, and patient education

• Solve ME/CFS Initiative – evidence-based information on ME/CFS, advocacy, and research

It may be helpful to:

• Find clinicians familiar with complex, multisystem conditions

• Go to appointments prepared with symptom timelines and prior testing

• Connect with other patients through in person support groups or social media to find support and resources locally