Where evidence
meets lived experience.
Cortney Gensemer, PhD, is a scientist dedicated to understanding complex chronic illnesses. Her work combines scientific research with clear, evidence-based communication that makes research accessible and empowers patients to better understand their health. Her perspective is shaped by both patient-centered research experience and lived experience navigating chronic illness.
Complex conditions rarely fit neatly into existing clinical or research frameworks.
i.e. hEDS, POTS, ME/CFS, endometriosis, MCAS, neuro-immune disorders, autoimmune disease
When research is unclear or inaccessible, misinformation can fill the gaps.
Misinformation thrives where scientific evidence is lacking or oversimplified.
Effective science communication empowers patients to make informed decisions.
Patients are better equipped to navigate their health when they understand the latest research.
Patient voices belong in research.
Patient experiences don’t replace evidence—but they help identify the questions worth studying.