Complex Chronic Illness Organizations & Resources
Brain Inflammation Collaborative (BIC) A patient-centered nonprofit focused on neuroinflammation, infection, and complex chronic illness. Runs a digital health registry spanning various conditions including ME/CFS, Long COVID, POTS, PANS/PANDAS, Sjögren's, and MS,
Endometriosis Foundation of America (EndoFound) An advocacy and research organization for endometriosis. Funds research, maintains a physician directory, hosts an annual medical conference and patient days. Also maintains a dedicated resource portal for patients of color, addressing the significant racial disparities in endo diagnosis and care.
Complex Disorders Alliance (CODA) A nonprofit accelerating research, diagnostics, and clinical innovation for complex disorders including Long COVID, ME/CFS, POTS, EDS/HSD, MCAS, fibromyalgia, endometriosis, and more.
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